Heartwings Love Notes
Heartwings says, “How we frame our experiences can help them help us grow.”
I participate in an internet group of people who deal with being in some way disabled. The chief experience they share is blindness. I have great admiration for the positive attitudes I’ve encountered among this group, and most particularly those of their founder and leader Patty Fletcher. She asked me to contribute some writing about my experiences with Parkinson’s and the disabilities I cope with.
There is a saying to the effect that if all of us were to hang our troubles on a tree, rather than exchange them, each would take back their own. I have only admiration for how others cope with being without sight. My Parkinson’s, a neurological condition, presents me with extreme slowness and considerable weakness. My hands are slow and rather clumsy; I can no longer sew and dealing with buttons is too challenging. My writing dwindles as I try to form the words. I tire easily, have balance issues, and walk bent over.
Coping with these conditions, at least for me, revolves around not feeling I need to try to do more or do better than I am able at the time. Some days are better, some worse. Making comparisons between the present and the past is negative, creating even more frustration than I already experience. I often underestimate how much time anything will take me and end up being late. Of course, I fear looking awkward or pitiable, although currently I do not shake and tremble as many with this condition do. That can change.
At least at this time my mind remains clear, apparently unaffected except for some forgetfulness. I’d be surprised if I wasn’t somewhat so at my age. I feel blessed for that, and for the help I receive from my dear husband and the Elder Services available to me. My mother started losing her mental focus in her 70’s, and lost much of it by the age I am now—I’ll be 90 this fall.
My current best coping mechanism is to see my condition as graduate school, working on a Master’s in patience and detachment, enhancing my ability to keep on keeping on. I struggle with my attempts to maintain my equilibrium keeping my mind on the present and ignoring thoughts of what I was once able to do. Comparisons with the past have little to no use when it comes to making progress; avoiding that keeps me focused on what I am able to accomplish.

I disliked it intensely when as a child I was ill and had to stay home from school. It was no fun whatsoever. My mother did not believe in coddling sick people. She thought it would make them malinger. Perhaps she thought if I was bored I’d get better sooner and want to get back to school. She did not treat me with sympathy. My entertainment consisted of listening to soap operas on the radio and reading if I was allowed to. When I had the measles I spent days in a darkened room with nothing to do. It was said reading would damage my eyes
There is a wonderful song by the Kingston Trio from the 60’s I believe, about lemons. It contains a real truth concerning them: they must be sweetened to taste good. The chorus goes: “Lemon tree very pretty, and the lemon flower is sweet, but the fruit of the lemon is impossible to eat. Very true, and it is also true that lemons can do all sorts of things besides make good recipes..
Of a recent Saturday, we were out and about checking the yard sales. While Stephen was perusing the items displayed there, I fell into a conversation with the person in charge. She had grown up in Grafton and spoke of how much had changed in the years she had lived here. I agreed. Although we have lived here only thirty years as of this year, we too have seen many changes. This got me to thinking about how it was then compared to how it is now.
While at Thanksgiving we are reminded to be grateful, that is surely not the only time to do so. it is vital to remember to be thankful frequently each and every day of our lives. For some time now I have begun and ended each day with this little prayer: “Thank you for this day and for all my days.” As often as possible each and every day I remind myself to acknowledge my gratitude for any good experience and even those that might not have been so good, because of the knowledge gained.
Someone once said, “Point a finger at someone else and you will be pointing four at yourself.” That is what we do when we judge someone else. However this is exquisitely easy to do. In fact, most of us do it all the time. For instance, how many of us who need to lose a few pounds look at an overweight person and say silently, “How could he or she get so out of shape?” I know I used to be guilty of that. Now my thought is, “Oh that poor person, how difficult it must be for him or her.”
It was the custom in my family when I was growing up to invite a non family member to the holiday dinners held at the home of my grandmother or my Great Aunt Alice, so that there wouldn’t be any “rows” as they were called…what could be termed family arguments. People were more likely to be on their best behavior with a relative stranger or at least a distant relative in their midst. The family I grew up in was rather vociferous.